Subject: Burn Update #2
From: David Rush <kumo@bellsouth.net>
Date: 09 Jun 2002 02:32:24 +0100
Message-ID: <okf7kl9xmmv.fsf@bellsouth.net>
Hi y'all Well life and healing have been moving on. At the moment I am deep into the second stage of outpatient treatment - appliance management. No, really. At this stage the bandages are all off (as of May 14), except that they're back on in a different way. Now I am wearing a custom-made glove on my right hand and silicone patches under a stocking on my left leg as close to 24 hours each day as I can manage. There's a fair bit of cleaning and other fooling around that goes with these devices: Patricia and I have been joking that I spend my days handwashing all of my medical stuff. It's a bit of an exaggeration, but it does feel that way sometimes. The morning ritual takes a good two hours now, from stretching through shower, dressing, creams, cleaning, applying silicone. I'm really glad that my employer has helped me to set up a home office space - adding a commute into this picture would make me really ineffectual. But I'm not yet back at work anyway. AOL won't let me back. The company doctor is (rightly) concerned that I don't cause any further damage to my hand from the repetetive motion of typing. Given my history with RSI, I have to agree with her, although I find the inactivity frustrating. It took a fairly good scare and some lecturing from the various medical people who are working with me to get me to slow down enough to actually heal. It all happened shortly after I sent the last update. I'd been feeling good; my physical therapist had done her magic to my wrist and, with stretching, I'd actually managed to get most of the motion back. I knew that I needed to reorganize my home office space in order to get it certified as safe by the company medical personell, so I spent most of the day cleaning the office and moving the furniture. And I still felt fine at the end of the day. The next morning I woke up and I'd lost about half of the motion in my hand. This worried me a bit, so I put a bit of extra effort into my stretching exercises. By the end of the day my wrist hurt all the way up to my elbow, and it was sending little pain telegrams up to my shoulder just for grins. The following day things weren't really much better and I was having problems with the skin on the *back* of my hand (the upper layers were tearing off). This scared me a fair bit so I called my PT to ask what was going on. Her response was simple: I overused my hand, and had additionally been neglecting the moisturizing cream/massage regimen. This message was repeated to me by the nurse who was coming out to change the bandages, and the company doctor several time over the next two days: "You're broken. Stop fooling yourself. Settle down and heal". Well anyway, that was over a month ago, and I have healed a fair bit. There are still good days and bad days, but I seem to have moved past the stage of sowing activity and reaping pain. It's far better to have things hurt right away. Then the only problem is figuring out whether or not you're supposed to work through the pain. It's turning out that the answer for me, from my PT anyway, is almost always "not". About two weeks ago, I was back in to the hospital for my periodic therapist visits, and my PT sent me over to the Occupational Therapists to have a brace made for my wrist at night. It takes a while to make a brace, so I spent the time asking questions, trying to get the answers to the questions that the AOL doctor was going to ask me at an upcoming appointment. During this discussion, the OT mentioned that I was suposed to be massaging the sking graft on my wrist for 15 minutes, four times each day. No one had ever quantified the practice for me, so I was quite shocked: I was doing maybe *one* minute, three times a day. Wanting to do all that I could to ensure the maximal recovery of dexterity in my hand I settled down to the task over the next few days. And it started to hurt. A lot, and not in the scar tissue, but down in the tendons. Since I knew that I was going to be back to the PT in just a few more days, I figured to push on through. When I finally got a chance to ask the PT about it, she told me that she hadn't given me a fixed prescription of massage because my burns were electrical: they didn't really know what sort of damage had occurred inside my wrist. She made it clear that I was to stay "within limits of comfort." So I quit. It took the best part of the *next* week for my hand to get back to what I now call normal. So "within limits of comfort" has become my mantra of healing, but it is a difficult one. I mean you can only find that limit when it starts to hurt, and something hurts on a low-level pretty much all the time. Even so, God has been doing some interesting things in the midst of this. I've been finding that when I get the saints to pray concerning these healing-process injuries that they get healed (as in the pain is gone and doesn't come back) immediately! It's been really surprising to me and doesn't fit in with my theology of healing very well at all. It seems that either you're well or not. Having God partially intervene in the natural process just doesn't seem right. Well obviously, He can do whatever He wants, but it still surprises me. So that's what's been going on. Thanks to all of you for your prayers and support. My hand still is a bit fragile, and the leg grafts don't like it if I walk too much, but I am definitely doing better. God's blessing on you all. david rush -- Thtrap it to the bench and put a good thick bolt of lightning through it, that'th our motto. -- Igor (in _Thief of Time_)